Babies born in New York State may be eligible for screening for additional disorders beyond those mandated by New York State Public Health Law.  These include consented pilot studies offered to families whose babies are born at participating hospitals, as well as testing for conditions available to all babies in the state.

Congenital Cytomegalovirus (cCMV) Infection

From October 2, 2023 to September 30, 2024, all newborn screen samples received by the New York State Newborn Screening (NBS) Program were screened for one extra condition for free: congenital cytomegalovirus (cCMV) infection. All babies were tested for cCMV unless parents chose to opt out of having their child’s cCMV screen result reported in their newborn screen record.

If your child has a positive newborn screen for congenital CMV your specialist may discuss participation in a long-term follow-up program called PROACTIVE NYS. For more information please click here.

Family Brochures

 

 

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